VAST Patient and Care Partner Advisory Council (PCP-AC)

The VAST Patient and Care Partner Advisory Council (PCP-AC) is a group consisting of eight people with lived experience (PWLE) of vascular cognitive impairment (VCI) or dementia - four live with VCI or dementia and four are care partners with experience caring for friends and family affected by VCI or dementia. They are available for engagement on a variety of topics including how best to engage people with lived experience (PWLE) in your research projects, providing input on research questions and study designs, or communicating knowledge and research findings with PWLE and members of the public. Learn more about each of the Council members by clicking the buttons under each of their pictures.

For clarity, PWLE are all those with lived experience; those PWLE who choose to be engaged (in research as research team members, in peer review, in advocacy, in governance, in presentations, education, ...) are Patient Partners; those that choose to enroll in research are Participants. In the future, there may be opportunities for you to work with some of the PWLE on this council as Patient Partners!

  • Myrna Norman

    Person With Lived Experience of VCI

  • Brian Dompe

    Person With Lived Experience of VCI

  • Christine Aiken

    Person With Lived Experience of VCI

  • Jennifer Monaghan

    Person With Lived Experience of VCI

  • Linda Grossman

    Care Partner of Someone Affected by Dementia

  • Richard Rocha

    Care Partner of Someone Affected by Dementia

  • Sandra Zdrale Headshot

    Shantha George

    Care Partner of Someone Affected by Dementia

  • Catherine Ann Kelly

    Care Partner of Someone Affected by Dementia

Interested in Engaging the PCP-AC?

Access resources designed to help you engage people with lived experiences and submit an engagement request for consideration.